Patient involvement and support

The National Respiratory Audit Programme (NRAP) aims to improve the quality of care for respiratory patients. NRAP actively engages with patients across our programme to ensure our outputs are aligned with the needs and priorities of people with lived experience and their caregivers.

Our work with patients

NRAP have collaborated with Asthma + Lung UK (A+LUK) and the Royal College of Paediatrics and Child Health (RCPCH) to establish vibrant lived experience panels. 

A+LUK represent adults with lived experience of conditions including, but not limited to, asthma and chronic obstructive pulmonary disease (COPD). This group share their own experiences of health and care with the aim of helping NRAP to focus on improving the things that matter most to people with these conditions.

The RCPCH represents children and young people with lived experience of asthma, as well as parents and carers. The Asthma &Me Ambassadors are aged 14–24 and have joined together from across the country with a shared mission to improve asthma care and services for children and young people.

These patient groups meet regularly online to share their priorities for respiratory care and discuss how NRAP can empower both people with respiratory conditions and those responsible for the care they receive. 

Support and resources for patients

NRAP work with our patient groups to co-produce resources to help people living with respiratory conditions understand their healthcare. 

You can refer to this jargon buster to help support your understanding of medical and audit terms used across our webpages, reports, and programme outputs. 

Adult asthma

Audit information for patients

Children and young people asthma

Audit information for patients  

What to expect when you go to hospital 

COPD

Audit information for patients 

Pulmonary rehabilitation

Audit information for patients  

Patients assessed for PR up to 31 March 2024

All PR services that are part of the NHS and care for people with respiratory conditions in England and Wales collect personal (confidential) information, and information about the care you receive. They will only collect this information if you agree that it can be included in the audit - this is called giving consent.

Patients assessed for PR from 1 April 2024

The audit has gained special legal permission to collect confidential information without patient consent, unless a patient has set a national data opt-out preference: